Studies

Kap Code, represented by Adel Mebarki

Raphael Germain, Kappa Santé, 4 Rue de Cléry, 75002 Paris

Our medical social media listening activity involves collecting, storing and analyzing verbatims from users and healthcare professionals, as part of bioinformatics research protocols and infodemiological studies. These data are collected anonymously or pseudonymously to protect the privacy that may be described in the testimonials, and are intended to increase understanding of patient, medical and therapeutic reality, on an aggregate and population scale. Only data associated with a sharing and secondary reuse agreement, from the posting author, are taken into account, on publicly accessible sources.

Content of the message posted publicly and certain associated data when present (location, date, time, pseudonym used, interactions such as "likes" and shares, interactions between users who follow each other,) for which consent has been given by the user.

All publicly accessible sources clearly available on the Internet, present in the Brandwatch supplier list

i. https://www.brandwatch.com/products/consumer-research/features/#:~:text=Consumer%20Research%20collects%20data%20from,thousands%20more%20APAC%20regional%20sites

Our medical social media listening activity involves collecting, storing and analyzing verbatims from users and healthcare professionals, as part of bioinformatics research protocols and infodemiological studies. These data are collected anonymously or pseudonymously to protect the privacy that may be described in the testimonials, and aim to increase our understanding of patient, medical and therapeutic reality, on an aggregate and population scale. Only data associated with a sharing and secondary reuse agreement, from the posting author, are taken into account, on publicly accessible sources.

Kap Code, 146 Rue Montmartre, 75002 Paris, France

From social networks, testimonials/data are stored on our server where they remain. The only files that may be sent to our partners are aggregate analysis reports containing anonymous verbatims with no identifying information, for illustrative purposes.

Data is kept for a period of 5 years.

As our raw data is extracted without any notion of the actual identity of the poster, we are unable to identify the potential data of a specific real person.

As our raw data is extracted without any notion of the actual identity of the poster, we are unable to identify the potential data of a specific real person.

i. Limits of the right to erasure :

1. the use of your data if it concerns a public interest in the field of health.

2. their use for archival purposes in the public interest, for scientific or historical research, or for statistical purposes.

Data processing is limited to the collection, storage and analysis of message populations for descriptive purposes. No decisions are taken automatically. However, in certain cases, all public testimonials from a user may be collected from the moment at least one message relating to a health condition is identified, for the purposes of monitoring and analyzing medical developments. Clustering algorithms (classifiers) can be used to identify specific sub-populations within public or user messages. If profiling or marketing targeting is never carried out, it is possible to identify the public Internet source on which one or more patients eligible for a clinical study are expressing themselves, with the aim of proposing a link which, depending on the user's personal choice, would enable them to apply for the study in question.